General

Since 2006, Ben’s Friends has provided safe and supportive online communities for patients living with rare diseases and chronic illnesses, as well as their caregivers and families. Today, patients can connect through many online platforms and social media communities. In many ways, we believe our mission has been accomplished — helping create a world where patients can more easily find […]

I have documented RBD, and other parasomnias, via video of the last few weeks. I’ve started doom scrolling about PD and LBD. Here is a link to the videos (I update it daily). I am interested in opening up a line of communication with others who might experience this or have a partner who might display some of this phenomena. 2 posts – 2 participants […]

Many people think sleep disorders are “just about being tired,” but we know they affect so much more—our focus, relationships, mood, and overall health. In this space, we can talk openly about how our sleep challenges impact daily life—and the coping strategies that keep us going. Whether it’s pacing your day, planning short naps, or explaining your condition to family or coworkers, […]