- Looking For Your Sleep Disorders Stories!by modsupport on January 11, 2024 at 12:32 am
@trust_level_0 Dear Sleep Disorders Support Member, For over 10 years, the Ben’s Friends online rare patient communities, run & moderated by rare patients themselves, have been a source of support for many of us, living with rare diseases. But it’s not enough. We would like more people to know about this wonderful service. To that effect, we are planning a social media campaign that will […]
- Some of the Rare Sleep Disordersby ben on July 17, 2023 at 3:10 am
As written by Sascha Gallardo Ben’s Friends Blog You might have had some problems falling or staying asleep especially on nights when you have a lot on your mind. In fact, it is estimated that there are around 70 million people in the US that have chronic sleep disorders, according to the Centers for Disease Control and Prevention. [1] But while many people are familiar with problems related […]
- Narcolepsy Is Beyond Sleepiness. How Does it Affect a Patient’s Life?by ben on July 17, 2023 at 3:07 am
As written by Sascha Gallardo Ben’s Friends Blog Narcolepsy, often thought to be a sleep disorder, is in fact a pervasive neurologic disorder with a genetic origin that causes an autoimmune response affecting every body system and facet of life. It is a rare long-term disorder wherein the brain is unable to regulate the sleep cycle and causes excessive sleepiness during the day. Some patients […]