Latest Discussions

Since 2006, Ben’s Friends has provided safe and supportive online communities for patients living with rare diseases and chronic illnesses, as well as their caregivers and families. Today, patients can connect through many online platforms and social media communities. In many ways, we believe […]

I have documented RBD, and other parasomnias, via video of the last few weeks. I’ve started doom scrolling about PD and LBD. Here is a link to the videos (I update it daily). I am interested in opening up a line of communication with others who might experience this or have a partner who might […]

Many people think sleep disorders are “just about being tired,” but we know they affect so much more—our focus, relationships, mood, and overall health. In this space, we can talk openly about how our sleep challenges impact daily life—and the coping strategies that keep us going. Whether […]

Living with a sleep disorder can be exhausting—physically, mentally, and emotionally. Whether you’re managing insomnia, sleep apnea, narcolepsy, or restless legs syndrome, you know how important good rest is—and how hard it can be to achieve. Many people in our community have found relief by […]

@trust_level_0 Dear Sleep Disorders Support Member, For over 10 years, the Ben’s Friends online rare patient communities, run & moderated by rare patients themselves, have been a source of support for many of us, living with rare diseases. But it’s not enough. We would like more people to […]