Latest Discussions

  • Documented RBD
    by MizzLizzIzz on January 18, 2026 at 5:02 pm

    I have documented RBD, and other parasomnias, via video of the last few weeks. I’ve started doom scrolling about PD and LBD. Here is a link to the videos (I update it daily). I am interested in opening up a line of communication with others who might experience this or have a partner who might […]

  • How Sleep Disorders Affect Daily Life—and How We Cope
    by modsupport on October 30, 2025 at 3:56 am

    Many people think sleep disorders are “just about being tired,” but we know they affect so much more—our focus, relationships, mood, and overall health. In this space, we can talk openly about how our sleep challenges impact daily life—and the coping strategies that keep us going. Whether […]

  • Finding Better Sleep—What’s Working for You?
    by modsupport on October 30, 2025 at 3:47 am

    Living with a sleep disorder can be exhausting—physically, mentally, and emotionally. Whether you’re managing insomnia, sleep apnea, narcolepsy, or restless legs syndrome, you know how important good rest is—and how hard it can be to achieve. Many people in our community have found relief by […]

  • Looking For Your Sleep Disorders Stories!
    by modsupport on January 11, 2024 at 12:32 am

    @trust_level_0 Dear Sleep Disorders Support Member, For over 10 years, the Ben’s Friends online rare patient communities, run & moderated by rare patients themselves, have been a source of support for many of us, living with rare diseases. But it’s not enough. We would like more people to […]

  • Some of the Rare Sleep Disorders
    by ben on July 17, 2023 at 3:10 am

    As written by Sascha Gallardo Ben’s Friends Blog You might have had some problems falling or staying asleep especially on nights when you have a lot on your mind. In fact, it is estimated that there are around 70 million people in the US that have chronic sleep disorders, according to the […]